WEBINAR | THE PATIENT ADVOCATE: TODAY & TOMORROW

REGISTRATION OPEN 

NEW Date & Time: 
Tuesday, December 7, 2021 5:00-7:00pm PST

ABOUT SUMMIT’S  WEBINARS:
This webinar is for all to attend – Medical professionals, caregivers, patients…everyone!

However, this webinar offers NO CME CREDITS.

Courtesy of our Sponsor, The Seim Family…

NO COST TO ALL ATTENDEES  

  • LIVE webinar
  • Panel discussion with LIVE Q & A following Presentations
  • Physicians, Patients, Researchers, Students    – Everyone is welcome!
  • (Content subject to change)
 

The Patient Advocate. Today and tomorrow.

What is the role of the Patient Advocate? 

What is the “purpose” of the  Patient Advocate today? …and tomorrow?

Guest Speaker: Benjamin Stecher, Patient Advocate

 

Benjamin Stecher was born in Nairobi, Kenya but grew up just outside Toronto, Canada. He studied history and philosophy at the University of Guelph, but as soon as he graduated he took off and spent most of the next decade living and working in East Asia as an education consultant.

All that changed when, at 29 years old, Benjamin was diagnosed with Parkinson’s disease. The promising future he had been building towards suddenly faded and was replaced by a gloomy fog of uncertainty and despair. As his disease progressed, he realized that he needed to come back home to learn how to better manage his disease.

But, as he started visiting labs and attending conferences, he soon found himself enthralled by the rampant pace at which biomedical science has progressed in the 21st century. He spent the next couple of years traveling the world visiting research centers and pharmaceutical companies to learn from the top minds in the field all that he could about this disease and what therapies were on the horizon.

He now speaks regularly at academic centers and biotech companies on issues related to neurodegenerative diseases, research advocacy and healthcare. He is also the founder of Tomorrow Edition (tmrwedition.com), and a patient advisor to several organizations including the Toronto Western Hospital Movement Disorder Clinic and the World Parkinson’s Congress. Benjamin has also authored several peer-review papers and serves on the editorial board of the Journal of Parkinson’s. Ben and Dr. Alberto Espay co-authored the recently released book, “Brain Fables” (published by Cambridge University Press).

Invited Speaker at:

Aligning Science Across Parkinson’s Workshop, Chan Zuckerberg Initiative’s Neurodegeneration Challenge Network Meeting, StemCellTalks Toronto, Partnerships in Clinical Trials Europe 2018,  2019 World Parkinson’s Congress, 2019 ADPD Congress – Roche sponsored talk, Alkahest, Biolegend, Lysosomal Therapeutics, Abbvie’s Sharing for Better Caring Symposium, University of Toronto Neuroscience Rounds, McGill (multiple classes), EPFL Open Science Summer Camp 2019, University of Cincinnati Neuroscience Rounds, Tanenbaum Open Science Initiative, 2018 & 2019 Rallying to the Challenge at Grand Challenges in Parkinson’s Symposium, 2018 & 2019 Parkinson’s Canada Research Symposium, European Parkinson’s Disease Association’s YOPD Symposium at the European Union Headquarters,  2018 Ontario Brain Institute Research Summit, The Buck Institute, 23andMe, System1 Biosciences, Duke-NUS, NIH Neuroscience Rounds, Aspen Biosciences, Porridge for Parkinson’s.

Guest Speaker: Kevin McCormack, Sr. Director Public Communications & Patient Advocate Outreach

Kevin McCormack is the communications director at CIRM, the state’s stem cell agency. The agency was created by voters when they approved Proposition 71 in 2004 and refunded in 2020 with $5.5 billion to fund stem cell research in California. Kevin considers himself to be the official  translator for the agency, working to turn complex language about equally complex science into everyday English that anyone can understand. Before joining CIRM he spent more than 20 years working as a journalist, most of that in TV news in the San Francisco Bay Area.

Moderator: Jeanne Loring, PhD, Stem cell biologist | Co-Founder Aspen Neuroscience | Professor Emeritus, &  Founding Director of the Center for Regenerative Medicine, Scripps Research Institute | Founder, Arcos Bioscience (now part of Viacyte) | Director and Science Advisor of Summit for Stem Cell Foundation.

  • Currently developing an autologous neuron replacement therapy for Parkinson’s disease
  • 30+ years experience in biotechnology & academic research focusing on stem cells, genomics, embryology, & neurobiology.
  • Ongoing Research apart from Parkinson’s disease: 
              Multiple sclerosis & autism
              San Diego Zoo Institute for Conservation in an effort to rescue the Northern White
              Rhino from extinction using stem cells. (iPSCs)

Refund Policy

If you are unable to attend a LIVE webinar, you may cancel up to the scheduled time of the event and receive a full refund. No refunds or exchanges for On-Demand Recoded Webinars. (Not yet available.) Refunds or exchanges for a LIVE webinar will not be given for no shows. As an alternative to a refund, you can substitute a registration for a future live webinar or have your fee converted to a tax deductible donation.

You must contact [email protected] to request a refund or move your registration to another webinar or to a donation. Cancelling your registration through GoToWebinar will NOT process a refund – you MUST contact Summit for Stem Cell Foundation at [email protected].

In the rare event that a webinar is cancelled or postponed due to unanticipated circumstances, registrants will be notified immediately and given the opportunity to either transfer their registration to another webinar or obtain a refund.

This policy supersedes all other policies regarding the LIVE CME Webinar series.