Last Updated: March 16, 2019
Summit for Stem Cell Foundation (“Summit”, “we,” or “us”) is a 501(c)(3) nonprofit organization working to raise awareness and funds as the organization, Summit’s mission is to support, educate, and raise awareness about the development of today’s and tomorrow’s evidence-based regenerative medical therapies focused on Parkinson’s disease and other neurodegenerative disorders. It is our goal to empower patients and caregivers with information to elevate their understanding in order to manage their healthcare.
We are intent on benefiting persons with Parkinson’s disease and supporting evidence-based scientific and regenerative medical research that may result in a treatment, cure, or benefit for Parkinson’s disease and/ persons with Parkinson’s disease.
THE INFORMATION WE COLLECT
The Summit Website does not recognize browser “do not track” signals, but several of our service provides who utilize these cookies, beacons and tools on the Summit Website enable you to opt out of this interest-based advertising by visiting www.networkadvertising.org/choices or www.aboutads.info/choices.
When you make an online donation to Summit through the Network for Good website, Network for Good may provide us with your personally identifiable information (“PII”) such as your full name, physical address and e-mail address. They may also provide us with non-personally identifiable information (“Non-PII”) related to you, such as the date of donation, amount of donation, and form of payment (for the sake of clarity, Summit does not receive your credit card or billing address information). This information will be used to acknowledge receipt of your donation for tax purposes in compliance with 501(c)(3) requirements. The information may also be used to place you on Summit’s mailing list to receive updates and information about the research and Summit’s progress to achieve its goals and for other purposes more fully described below.
If you choose to make a donation in honor or memory of someone, you will be asked to submit additional information such as that individual’s, family’s or friend’s full name and your relationship to that individual. This information will only be used for the purpose of contacting the individual, family or friend you specify to notify them that a donation was made in the individual’s name
Additional Active and Passive Collection
We may collect information in a number of additional ways when you visit our site.
Active Collection: We collect certain information when you voluntarily provide it, such as if you send us an e-mail, fill out a contact or feedback form, subscribe to our website, or participate in our surveys. Such information may include PII such as your name, e-mail address, physical address and residential or mobile number.
Passive Collection: We may also automatically collect information and monitor user activity through your use of the Summit Website (“Usage Information”). Generally, this information is collected through the use of “cookies” or web beacons on the Summit Website or in our e-mail messages, that allow us to monitor and collect certain limited information such as a user’s IP address, browser information, reference site domain name, user traffic patterns and site usage.
HOW WE USE THIS INFORMATION
We may use personal and other information we collect through the Summit Website for the following purposes:
To respond to your e-mails, subscriptions, questions, inquiries, comments, feedback, requests and/or complaints;
To request feedback and to otherwise contact you about your use of the Summit Website;
To provide you, by mail, e-mail or telephone: informational updates on the development of the autologous dopamine neuron replacement therapy for Parkinson’s disease and, once receiving FDA-approval, the pilot study and clinical trial(s), charitable donation opportunities, event invitations, and other communications and information that we think will be of interest to you;
To conduct surveys;
To process and complete any transactions, requests or donations that you submit through the website;
To promote or publicize your donation to Summit, with your consent;
To personalize and improve the Summit Website and users’ experiences, to increase the functionality and user friendliness of the Summit Website, to deliver content or features that match user profiles or interests;
To monitor and analyze Summit Website usage and trends and otherwise measure the effectiveness of the Summit Website;
To send you confirmations, updates, security alerts, and support and administrative messages, to detect and prevent fraud, and to otherwise facilitate your use of, and our administration and operation of the Summit Website;
To notify you about important changes to the Summit Website; and
For any other purpose for which the information was collected.
WHO WE SHARE THIS INFORMATION WITH
We will not share personal information we collect from you through the Summit Website with third parties, excepted as described below:
Third-Party Service Providers: We may engage third parties, such as our fiscal sponsor, Mission Edge San Diego, to perform services in connection with the operation of our organization and the Summit Website. These third-party service providers have access to your PII and other information we collect from you for the purpose of performing services on our behalf.
Company’s Security: We may release information about our users, including PII, when legally required to do so, at the request of governmental authorities conducting an investigation, or to verify or enforce compliance with the policies governing the Summit Website and applicable laws. We may also disclose such information whenever we believe disclosure is necessary to protect the rights, property, or safety of Summit or any of our respective affiliates, business partners, donors or others.
Aggregate Information: We may disclose non-identifying, aggregated user statistics to third parties for a variety of purposes, including describing our services to prospective partners and other third parties. Examples of such statistics include the number of users who visited the Summit Website during a specific time period or purchased a specific product through this Summit Website.
We care about the security of your information and will apply the strictest industry standard applications to protect your and Summit’s information. However, you should be aware that “perfect security” does not exist on the Internet, and third parties may unlawfully intercept or access transmissions or private communications. We cannot and do not ensure or warrant the security of any information you transmit to Summit and you do so at your own risk.
THIRD PARTY LINKS
The Summit Website is not intended for use by children under the age of 13, and Summit does not knowingly collect or use any personal information from such children. If we become aware that we have unknowingly collected personal information from a child under the age of 13, we will make commercially-reasonable efforts to delete such information from our database.
The Summit Website is operated in the United States. If you are located in the European Union, Canada or elsewhere outside of the United States, please be aware that any information you provide to us will be collected in or transferred to the United States. By using the Summit Website, participating in any of our services and/or providing us with your information, you consent to this transfer.
YOUR CHOICES / UNSUBSCRIBE
You may continue to receive some non-promotional e-mails after you opt out for specified marketing purposes. In addition, you should be aware that it is not always possible to completely remove or delete all of your information from our databases without some residual data because of backups and other reasons. Please be aware that we will process your request as quickly as we reasonably can, but it may not be possible to process your opt-out choices immediately. We appreciate your patience and understanding in giving us time to carry out your request.
CHOICE OF LAW
WEBINAR, EVENT & CONFERENCE POLICY
The views expressed by speakers or other third parties in Summit for Stem Cell Foundation (Summit) webinars, events and/or conferences are those of the speaker or third-party and not, necessarily, of Summit. In addition, although we have taken precautions to minimize the risk of transmitting software viruses, we advise you to perform your own virus checks. We do not accept liability for any loss or damage caused by software viruses.
With regard to any information presented by a speaker or third-party at any Summit event, Summit does not make any warranty, expressed or implied, including the warranties of merchantability and fitness for a particular purpose, and specifically disclaims any legal liability or responsibility for the accuracy, completeness, or usefulness of any information, product, service or process presented and makes no representation that its use would not infringe upon privately owned rights.
Furthermore, the presentation of any material or information by a third party regarding any specific opinion, commercial product, process, or service by trade name, trademark, manufacturer, or otherwise, does not constitute or imply Summit’s endorsement or recommendation of such opinion, process, service, item or organization. Any such material or information presented by a third-party in any format at a Summit event, without limitation, is for informational purposes only.
Summit for Stem Cell Foundation
P.O. Box 1420
San Marcos, CA 92079